A few people have ask me to tell you a little more on what Leigh's syndrome is.  Leigh's is a metabolic problem, Caleb has many seizures, and is on many different medications for these.  By 1 yr. old Caleb could no longer eat by mouth for his muscles in his throat were to weak, so a G-Tube was put in.  Caleb was never able to roll, or sit up, or walk, or talk. He could laugh and use eye contact.  Caleb was not suppose to live pass 3 yrs, and what a miracle he is still here.  Caleb over the years has really enjoyed watching Winnie- the-Pooh videos or listening to it on his cassette player. Without Pooh playing Caleb cryed and fussed, so needless to say our family knows all the Pooh tapes by heart.  Caleb  has always been made a big part of our family, he came along almost everywhere with us, that is sometimes a big challenge.  Caleb really enjoyed going to Disney World and meeting all the characters.  Caleb has gone through a lot in his life from many pnemonias and sickness, to just slowly watching more and more strength being taken from his body.  Our first son Joshua, also had Leigh's syndrome, he only lived until he was 2 yrs.  Leigh's is genetic and we were very fortunate our daughter didn't have this.  They do not no where the genetic link is in our family.  Leigh's syndrome is a rare disease, and hard to diagnose. If anyone would like to ask questions or comment you may contact me at Carlawindemuller@hotmail.com