Caleb  has had a tough weekend, he is back on oxygen and lungs have alot of fluid in them.  He has not been very comfortable as breathing is difficult.  Since Friday Caleb has maybe had 8oz of formula, and a couple of ounces of pedilyte with meds.  The nurse from Hospice has upped his pain meds, and he is sleeping soundly for now, I'm glad to see this.  His blood pressure is very low, and his heart rate and temperatures are bouncing all over.  Friday night he had a temp of 104.3 and within 12 hrs his temp went down to 96.6, so the range is very drastic. I can't even imagine how hard this has to be on him. Caleb's stomach is being torn up by the meds, he has quiet a bit of blood in his residuals from his g-tube, this I would think is very painful.  I am sure glad we have God by us, this would be  terrible if Caleb had to go through this by himself and we did not have any one to lean on at these times.