Hope everyone had a great Thanksgiving and ate lots of food.  We had a very good Thanksgiving, we had to seperate and take turns going to our folk's homes, and then ate our selves silly.  Caleb had a very quiet day relaxing at home. He has been very quiet, lots of sleeping, and still not getting more than 7 oz. of formula in during the day. We were very Thankful for still having him here with us this Holiday, and for all the people who have been praying for our family.  Zach and I went out shopping at 5:oo a.m., Zach has never been shopping with that many people, he said it was fun. This past year the economy  has made life harder for alot of us, but we still have it better than so many , God is good.

Caleb has had a few very comfortable days. He has taken in about 5 to 7 oz of formula in these days. Yesterday he started with more congestion, we think he is asperating food into his lungs.  We backed off on the amount of food that is given to see if we can get the congestion under control, before it gets as bad as last Thursday.  Caleb is starting to lose a lot of weight, his oxygen levels have been holding steady in the high 80's to low 90's, which for him is good. He has not been sleeping very well for the last few nights, he thinks he has to be up at 4 to 4:30 in the morning. I think Caleb is getting weaker, he has no muscle control anymore, he's like a rag doll. Thanks to all who are praying for Caleb and our family

As many of you know our youngest son Zach has autism.  I would like to ask for prayers for him  also.  Zach struggles with social issues, he is starting to realize he is not like everyone else, and wants to be so badly.  Zach struggles with depression, and school is a big struggle for him not to mention everything going on at home.  Zach is very fun, and has a huge heart, and he's going through a very tough age with lots of changes.  It's tough for the quote normal child, let alone being autistic. I ask for prayers also for the teachers and friends to give them what they need to work with Zach.  He seems to have a great group of teachers around him this year, which is so important.

Caleb is a little more comfortable, thanks to the new meds.  He has not had any foods for a few days, just enough pedialyte to get his meds down.  I've been able to get him back off the oxygen, for now, and his heart rate is lower.  It's amazing how strong his body is to keep going through these up and down swings.  Grandpa's and Grandma's have come just about everyday to see Caleb, he is a lucky little boy to have such wonderful Grandparents, who love him so much.  His sister calls everyday to check in, this is all taking it's toll on everyone, Good thing we all believe in God and know someday he will be out of all his pain, until then we are doing our best to take care of Caleb and love him. 

Caleb is having a very tough day.  He is very congested, and on 4 liters of Oxygen, to be able to keep him at about 91% oxygen, which means he's not breathing very easily.  We gave him lots of different meds to try to help him relax, but still is not finding sleep.  As a parent this has to be the hardest thing to  watch your child suffering, and not be able to anything about it.  Right now I would give anything to see him giggle at Winnie the Pooh on Tv.  I pray God will let him find rest and comfort soon.  

Caleb is not having a very easy day.  He is very congested, we put him on oxygen to see if we can make him a little more comfortable, and gave him some nebulizer meds, to hopefully open his air ways a little more.  I think it will a long night, hope not for his sake. We asked Hospice to put him on a antibiotic, just in case it would pneumonia again.  I'm glad I know God's angels are surrounding and watching over him, until he is safe in Gods arms.

Caleb has had a pretty quiet weekend, seems to do more sleeping, having a hard time today keeping his extremities from getting cold.  So we wrapped him in 5 big blankets, and finally he has warmed up.  Suctioned more than normal the last few days.  But I'm glad he stayed fairly comfortable, hopefully God continues to grant him that.  Please continue to pray for comfort, and peace.

Camping at Ludington State Park 2007

The prayers are helping, Caleb has been very comfortable for the passed 2 days.  He still is not taking more than 8 oz of formula a day. We still continue to suction when necessary, his temperature bounces all over from 99 to 103, but his seizures seem to be easing off at least for now.  Caleb skin is starting to break down in spots, from laying so much, hopefully they do not break open.  God says he will never give you more than you can handle and Phlippians 4:19 says and my God will meet all your needs according to his glorious riches in Christ Jesus.

Zach continues to struggle with all this, he wants alot of attention at times, and other times he wants to be left alone. We pray that he will concentrate on the small phase from Psalms that says be still and know that I am God.  He continues to do well at school, with some really good friends and mentors by his side, that are helping him through this also.